When well-meaning folks ask Aster, "Oh, did you have an owie?" Aster does not realize he's being asked, "Why are you wearing an AFO?*" nor, the few times we've been asked, do I, at least not immediately. Weird pauses have ensued
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With AFO Nov. 2014 |
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June 2014 |
Explaining that he did not recently injure himself is not a big deal in our lives, but I know many CHASA parents and adults with hemiplegia tire of the questions, and some parents fear casted constraint therapy** just because they don't want to deal with queries about broken bones.
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King of the Hill, Nov. 2014 |
Helping people understand that there are many reasons for braces, casts, gloves, and supports***, and that assuming recent injury can be awkward is a small reason for why I'm raising awareness about pediatric strokes, but it one. I can recognize "When is he going to get that off?" as a kindly-meant conversation starter, yet I can see how tired mothers of kids who may be wearing AFOs for life see it as a trigger for defensive outbursts or tears. Some would rather pretend injury than deal with the embarrassed pity that can accompany, "actually he had a stroke/cerebral palsy/permanent brain damage and has worn braces since he was 2."
As you can see from the images, three-year-old Aster does not lead a life requiring pity, even with his oh-so-fashionable supports.
*Ankle Foot Orthosis
**The non-affected ("good") hand is casted so that the child must use the affected ("bad") hand and develop new neural circuitry and new muscle memories.
***Not to suggest that I am an expert on all of the many reasons.
1 comment:
WE are blessed to have such a wonderful pair of grandsons and parents of those grandsons who do such a good job of nurturing them.
God has been good to us.
grandpa and grandma
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